Pen to paper..2/2/2021

Good afternoon I hope this blog finds you in good health and spirits, yesterday morning I received some news in regards to my health. My hematologist called and informed me of my lab results. I mean I received it on MyChart even before he called but I did not know what any of it meant. He called and said, " Ms. Gonzalez" I have the results from the blood work you did last week. I said ok is everything ok. He continued to tell me that it was what he has suspected that I had protein S which is a rare disorder and I kind of tuned him out after that I immediately hopped on my laptop and looked up protein S because this doctor doesn't know what he is talking about, right? How could nobody else caught this so-called protein S. I looked it up read all the info I could before snapping me back to reality and with hem saying, " there is nothing else that needs to be done, no more test so this is our last visit". I said, 'Thank you" then I hung up. I started to do more research on it and suddenly it all started to make sense. My history it all added up. The reasons for me getting blood clots while I was on coumadin. The pulmonary embolism the DVT in my left upper thigh. I just cried and cried and cried. Then I called my daughter for her to console me, but when she picked up I thought straight for a second that I did not want to worry her. I was thinking logically now and I called the only person I could call and that was my big sister. I began to cry a little before she eventually got me talking and she started joking about it which made me feel a ton better. As if I did not have enough, to begin with. I was diagnosed with Lupus after being admitted into the hospital with other diagnoses until they finally got it. Then after that, I needed emergency heart surgery because there was an obstruction in my mitral valve. Right after that, I developed a DVT in my left leg while on heparin. Two days later I got a bad ache in my right ear when they diagnosed me with hearing loss. I had a few TIA's in the following years to come noting too big just speech impediments until 2014. While taking a shower I felt my legs wobble before falling in the shower and my speech became slurred. I didn't go to the hospital till 5 days later because I did not have insurance in Florida. They gave me subpar treatment and kicked me out literally no therapy no nothing just sent me home. Then in 2019 something happened while driving home and my vision became blurry and my mouth was dry like I could not get enough water in me. It felt like I was in a desert for a week. That is when the doctors diagnosed me with Sjogren's syndrome. Well, it leaves me dry no big deal. This has to be it. I have gotten all the things that one human person can possibly endure. Here we are 2021 going to the doctors for a regular check to see how my blood is doing since being switched over to Lovenox injections. They took like 10 tubes no lie. Then yesterday boom it hit me like a ton of bricks. And I could no longer hold it inside. But I am a fighter, a warrior and now I can definitively say I AM UNIQUE due to my protein S. Everything that was supposed to make me weak only made me stronger. Here I am today fighting for my life literally. With the help of God and my children I know I am going to keep on getting back up. I am a LUPUS WARRIOR I am also MIZZ UNIQUE. And I am not going anywhere without a FIGHT!